Glossary

ACP

Advance care plan

AfC

Agenda for Change

APPM

Association of Paediatric Palliative Medicine

CCGs

Clinical commissioning group

CCN

Community children’s nursing

CHC

Continuing healthcare for adults

CNS

Clinical nurse specialist

CPOONs

Children and young people’s oncology outreach and symptom care nurse specialists

C-POS

Children and young people’s palliative and end of life care Outcome Scale

CQC

Care Quality Commission

CRG

NHS England clinical reference group

CYP

Children and young people

CYPACP

Child or young person and Young Person’s Advance Care Plan Collaborative

DLA

Disability living allowance

DWP

Department of Work and Pensions

EHC

Education, health and care

EHCP

Education, health and care plan

EHIA

Equalities and health inequalities impact assessment

EPaCCs

Electronic patient care co-ordination systems

GRID

Paediatric sub-speciality training

HWB

Health and wellbeing board

ICB

Integrated care board

ICS

Integrated care system

JSNA

Joint strategic needs assessment

MDT

Multidisciplinary team

NCMD

National Child Mortality Database

NG

National Institute for Health and Care Excellence guideline

NICE

National Institute of Health and Care Excellence

ODNs

Operational delivery network

PCA

Patient controlled analgesia

PCSP

Personalised care and support planning

PEoLC

Palliative and end of life care

PHB

Personal health budget

PIP

Personal independence payment

POSCU

Paediatric oncology shared care unit

PTC

Principle treatment centre

QOF

Quality and Outcomes Framework

QS

Quality Standard

RCPCH

Royal College of Paediatrics and Child or young person Health

SCN

Strategic clinical network

SEN

Special educational need

SEND

Special educational need and disability

SPIN

Special interest

SREL

Special Rules for End of Life

TAC

Teams around the child or young person

TYA

Teenager and young adult

WTE

Whole time equivalent