Commissioning children's palliative care
The comprehensive guide to help NHS Integrated Care Boards (ICBs) meet their legal duty on palliative and end of life care for children and young people.
This website will help ICBs understand:
What children and young people’s palliative and end of life care is.
Which children and young people may need it, and what the characteristics of this population are.
What can be done to enable children and young people to receive high quality personalised palliative and end of life care and support.
Children and young people’s palliative and end of life care aims to achieve the best possible quality of life and end of life care for a child or young person with a life-limiting or life-threatening condition and their family. It is an active and total approach to care.
Andy Fletcher Chief Executive Together for Short Lives
About children and young people’s palliative and end of life care
What children and young people’s palliative and end of life care is and how it differs from the palliative and end of life care needed by adults.
Meeting statutory duties
The legal duties which directly relate to the palliative and end of life care needed by children and young people.
Strategic planning
Understanding and meeting the demand for children and young people who need palliative and end of life care.
Procuring services
Resources and guidance to help ICBs procure high quality and personalised care services for children, young people and families.
Benchmarking services
How to benchmark palliative and end of life care services for children and young people against the Ambitions for Palliative and End of Life Care and England-wide guidance and standards.
Care providers
The range of professionals and organisations who provide palliative and end of life care for children and young people.
Case studies
See real life examples of how palliative and end of life care has impacted people